Overview

• We are the home of the ICECAP capability measures. The ICECAP measures aim to capture outcomes beyond health and have been recommended by multiple national bodies across different countries as suitable alternatives to measures like EQ-5D in the economic evaluation of health and care interventions. ICECAP measures are now available across the life course: from children and young people, adults, older adults and those near the end of life. They offer an alternative or complement to health outcome measures.
• We are research leaders in developing outcome measures using qualitative research methods. Current projects include the development of ICECAP measures for children and young people
• We also have experience in adapting existing outcome measures. We have adapted measures for them to be more appropriate for different languages, cultures and specific patient populations (e.g. dementia).

Examples of the work our team has done in measure development and adaptation

Sutton and Coast (2015) Development of a supportive care measure for economic evaluation of end-of-life care using qualitative methods. Palliative Medicine https://doi.org/10.1177/0269216313489368

Mitchell et al. (2021) Challenges in developing capability measures for children and young people for use in the economic evaluation of health and care interventions. Health Economics   https://doi.org/10.1002/hec.4363

Husbands, Mitchell and Coast (2024) Key Insights into Developing Qualitative Concept Elicitation Work for Outcome Measures with Children and Young People. Patient https://doi.org/10.1007/s40271-023-00663-6

Baji et al. (2020) Capability of well-being: validation of the Hungarian version of the ICECAP-A and ICECAP-O questionnaires and population normative data. Quality of Life Research https://doi.org/10.1007/s11136-020-02542-1