COVID-19: Making a difference

Since April 2020, we have been asking our participants to help us understand more about COVID-19 by completing questionnaires.

We have then made this data (along with all the data we have collected from our participants in the past) available to researchers across the country so they can:

  • understand more about the prevalence of the disease and how it is transmitted among the general population
  • learn more about the psychological, social and economic impact of the government’s lockdown strategy, and how this impact is changing over time

So far, we have run two questionnaires looking at COVID-19 symptoms, mental health, lifestyle, finances and family life.

We’ll be updating this page regularly as we have more news to share. Please also make sure you follow us on Facebook, Twitter, and Instagram for more updates.

Play your part

If you’re a participant, you can still get involved in this vital research – even if it’s been a long time since you’ve taken part in the study. 

If you’re not sure whether you are (or have been) part of the study, or if you haven't done anything with us for a long time, please text your name and date of birth to 07772 90 90 90 or email us on so we can check and update our records.

We need as many people as possible to take part in this research, so please don’t hesitate to get in touch if you have any questions about what’s involved.

We've put together a short guide outlining how your records are used in COVID-19 research

What we’ve learnt so far

We had over 13,000 responses to our two questionnaires  - thank you to all our participants for your support.

You can read more about the responses we received to both questionnaires in the reports below:

Initial findings show that there has been a rise in anxiety levels since the start of lockdown, particularly among young people.

You can also hear from Dr Kate Northstone about what we've discovered so far (YouTube video).

Using our data and questionnaires

If you’re a researcher, you can read more about what’s included in our dataset and how to access it free of charge for both of the questionnaires through the links below:

We can also send you more information about the questionnaires if you wish – please email to find out more. We hope to make data from our second questionnaire available in late July.

In addition, we're also managing a new questionnaire alongside Generation Scotland to help researchers worldwide use any population study to address COVID-19 issues. The Wellcome COVID-19 questionnaire is free, and validated for any biomedical or social science researcher. To request the questionnaire, please email


Our COVID-19 research has been mentioned in the following Health Data Research UK (HDRUK) updates for SAGE and UKRI Medical research Council /Department for Health and Social Care (DHSC):

HDRUK weekly update May 2020 (PDF, 574kB)

HDRUK weekly update June 2020 (PDF, 698kB)

HDRUK fortnightly update August 2020 (PDF, 625kB) 

HDRUK report - lessons from COVID 19 (PDF, 398kB)


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