COVID-19: Making a difference
Since April 2020, we have been asking our participants to help us understand more about COVID-19 by completing questionnaires.
We have then made this data (along with all the data we have collected from our participants in the past) available to researchers across the country so they can:
- understand more about the prevalence of the disease and how it is transmitted among the general population
- learn more about the psychological, social and economic impact of the government’s lockdown strategy, and how this impact is changing over time
So far, we have run two questionnaires looking at COVID-19 symptoms, mental health, lifestyle, finances and family life.
Play your part
If you’re a participant, you can still get involved in this vital research – even if it’s been a long time since you’ve taken part in the study.
If you’re not sure whether you are (or have been) part of the study, or if you haven't done anything with us for a long time, please text your name and date of birth to 07772 90 90 90 or email us on firstname.lastname@example.org so we can check and update our records.
We need as many people as possible to take part in this research, so please don’t hesitate to get in touch if you have any questions about what’s involved.
We've put together a short guide outlining how your records are used in COVID-19 research.
What we’ve learnt so far
We had over 13,000 responses to our two questionnaires - thank you to all our participants for your support.
You can read more about the responses we received to both questionnaires in the reports below:
Initial findings show that there has been a rise in anxiety levels since the start of lockdown, particularly among young people.
You can also hear from Dr Kate Northstone about what we've discovered so far (YouTube video).
Using our data and questionnaires
If you’re a researcher, you can read more about what’s included in our dataset and how to access it free of charge for both of the questionnaires through the links below:
- Wellcome Open Research data note for questionnaire one April - May 2020
- Wellcome Open Research data note for questionnaire two May - July 2020
We can also send you more information about the questionnaires if you wish – please email email@example.com to find out more. We hope to make data from our second questionnaire available in late July.
In addition, we're also managing a new questionnaire alongside Generation Scotland to help researchers worldwide use any population study to address COVID-19 issues. The Wellcome COVID-19 questionnaire is free, and validated for any biomedical or social science researcher. To request the questionnaire, please email firstname.lastname@example.org.
Our COVID-19 research has been mentioned in the following Health Data Research UK (HDRUK) updates for SAGE and UKRI Medical research Council /Department for Health and Social Care (DHSC):