The CVI Project: Prevalence, impact and support for paediatric cerebral visual impairment
This 5-year programme of work combines 3 main studies (a school-based survey and nested case-finding study; qualitative research and a feasibility randomised trial) all related to increasing understanding about CVI and how best to help affected children.
CACH Team: Cathy Williams, Rose Watanabe, Trudy Goodenough, Rose Clark
The CVI project is a 5-year programme (2015-2020) of research by the National Institute of Health Research (NIHR).
The CVI project is in three parts;
The CVI Prevalence study : a school-based questionnaire survey involving 2300 primary school aged children, with detailed examinations of 260 of the children to identify those with signs of CVI.
The CVI Impact study: a Core Outcome set project involving interviews with X children and their families, an email-based survey and a consensus meeting, resulting in a Core set of 15 outcomes relevant to families and professionals.
The CVI Feasibility study: a study to estimate the effectiveness of a new service to support children in primary schools with CVI.
Publications
Papers due for submission 2019:
Prevalence study outcome paper
Prevalence study Professional Perspectives paper
Core Outcome set paper
Protocol paper for Feasibility study
