Explore data and samples
We have a vast number of samples and phenotypic, environmental, genetic and linkage data gathered from different cohort groups over the past 25 years. There are several ways you can explore this resource.
New COVID-19 data
Data from our first COVID-19 questionnaire (April- May 2020) and our second COVID-19 questionnaire (May - July 2020) is now available. You can read more about these resources below:
- Wellcome Open Research data note for questionnaire one April - May 2020
- Wellcome Open Research data note for questionnaire two May - July 2020
The datasets as described in the data notes are free to access (bar a small admin fee), but if you require other data, our usual data access processes apply. Please email email@example.com if you would like to find out more.
- Update to Life@25+ questionnaire data (YPE) - to include Strengths and Difficulties; Anxiety; ADHD medications; Behaviour; Depression and self-harm; Personality; Life at Home; and the associated Friend/Partner Questionnaire with corresponding questions about the study participant.
- Your Children and Grandchildren questionnaire (TE) - mother's responses about child's behaviour, personality, strengths and difficulties, communication skills, attention and activity.
We have published two papers detailing the ALSPAC cohort profile, as well as a short summary outlining recruitment and representativeness.
- Our data dictionary (zip file, 278MB) includes detailed information, including frequencies, on all the data that are currently available.
- Our variable catalogue (zip file, 2MB) is a simple list of all ALSPAC variable names and labels that are available, grouped according to data source and timepoint.
- Our variable search tool allows simple searching across variable names and labels to help with identifying what data might be available.
You may also like to use the searchable indexes of ALSPAC variables available on the CLOSER Discovery website – a search engine that allows you to explore the content of eight leading UK longitudinal studies, and provides metadata on phenotypic and environmental variables across those studies.
If we have the data and samples you require, you can request to access the data and samples for your own research.
A number of ALSPAC datasets can be accessed externally, without the need for project proposals or exec permission, for specific research or for training purposes. A list is available here.
Participants have completed a large number of questionnaires covering a wide range of topics.
Participants have provided data and samples via hands-on assessment in clinic at multiple time points.
Participants have donated a range of samples, including blood, urine, hair, nails, saliva and teeth.
Linkage to routine health and social records
Participant data has been linked with a variety of external data sources (for example, GP records, criminal and civic registration records).
Children of the Children of the 90s
Many of our original participants have become parents themselves. We are now collecting information about the health and lives of their children, extending ALSPAC to become a unique three-generation study.
Children of the 90s (ALSPAC) study history
More than 1,000 boxes of records documenting the ALSPAC study from its early planning stages in the 1980s to the mid 2000s, including hard copies and electronic records.
Natural and built environment data
Data have been collected relating to participants natural and built environment. Additional environmental exposure data can be linked using geocoded lifecourse residential addresses.
If you cannot find the information you are looking for, or would like to talk to a member of our team about accessing data or samples, please email firstname.lastname@example.org (data) or email@example.com (samples).