Publications

    1. Centralization of services for children born with orofacial clefts in the United kingdom: a cross-sectional survey. Scott JK, Leary SD, Ness AR, Sandy JR, Persson M, Kilpatrick N, Waylen AE. Cleft Palate Craniofacial Journal. 2014 Sep;51(5):e102-9.
    2. Perceptions of team members working in cleft services in the United kingdom: a pilot study. Scott JK, Leary SD, Ness AR, Sandy JR, Persson M, Kilpatrick N, Waylen AE. Cleft Palate Craniofac ial Journal. 2015 Jan;52(1):e1-7.
    3. A cross-sectional survey of 5-year-old children with non-syndromic unilateral cleft lip and palate: the Cleft Care UK study. Part 1: background and methodology. Persson M, Sandy JR, Waylen A, Wills AK, Al-Ghatam R, Ireland AJ, Hall AJ, Hollingworth W, Jones T, Peters TJ, Preston R, Sell D, Smallridge J, Worthington H, Ness AR. Orthodontics & Craniofacial Research. 2015 Nov;18 Suppl 2:1-13.
    4. Structural outcomes in the Cleft Care UK study. Part 2: dento-facial outcomes. Al-Ghatam R, Jones TE, Ireland AJ, Atack NE, Chawla O, Deacon S, Albery L, Cobb AR, Cadogan J, Leary S, Waylen A, Wills AK, Richard B, Bella H, Ness AR, Sandy JR. Orthodontics & Craniofacial Research. 2015 Nov;18 Suppl 2:14-24.
    5. Functional outcomes in the Cleft Care UK study--Part 3: oral health and audiology. Smallridge J, Hall AJ, Chorbachi R, Parfect V, Persson M, Ireland AJ, Wills AK, Ness AR, Sandy JR. Orthodontics & Craniofacial Research. 2015 Nov;18 Suppl 2:25-35.
    6. The Cleft Care UK study. Part 4: perceptual speech outcomes. Sell D, Mildinhall S, Albery L, Wills AK, Sandy JR, Ness AR. Orthodontics & Craniofacial Research.2015 Nov;18 Suppl 2:36-46
    7. Cleft Care UK study. Part 5: child psychosocial outcomes and satisfaction with cleft services. Waylen A, Ness AR, Wills AK, Persson M, Rumsey N, Sandy JR. Orthodontics & Craniofacial Research. 2015 Nov;18 Suppl 2:47-55.
    8. Centralization of cleft care in the UK. Part 6: a tale of two studies. Ness AR, Wills AK, Waylen A, Al-Ghatam R, Jones TE, Preston R, Ireland AJ, Persson M, Smallridge J, Hall AJ, Sell D, Sandy JR. Orthodontics & Craniofacial Research. 2015 Nov;18 Suppl 2:56-62.
    9. Which index should be used to measure primary surgical outcome for unilateral cleft lip and palate patients? Jones T, Leary S, Atack N, Ireland T, Sandy J. Eur opean Journal of Orthodontics. 2016 Aug;38(4):345-52
    10. Are photographs a suitable alternative to dental study casts when assessing primary surgical outcome in children born with unilateral cleft lip and palate?  Jones T,  Leary S,  Atack N,  Chawla O,  Ness A,  Ireland T,  Sandy J. European Journal of Orthodontics. 2016 Aug;38(4):341-4
    11. Centre-level variation of treatment and outcome in 5-year-old children with non-syndromic unilateral cleft lip and palate: The Cleft Care UK study.Part 1: Methodology and results for dento-facial outcomes. Wills AK, Mahmoud O, Hall A, Sell D, Smallridge J, Southby L, Toms S, Waylen A, Wren Y, Ness AR, Sandy JR. Orthodontics & Craniofacial Research. 2017 Jun;20 Suppl 2:1-7.
    12. Centre-level variation in outcomes and treatment for otitis media with effusion and hearing loss and the association of hearing loss with developmental outcomes at ages 5 and 7 years in children with non-syndromic unilateral cleft lip and palate: The Cleft Care UK study. Part 2.Hall A, Wills AK, Mahmoud O, Sell D, Waylen A, Grewal S, Sandy JR, Ness AR. Orthodontics & Craniofacial Research. 2017 Jun;20 Suppl 2:8-18.
    13. Centre-level variation in dental treatment and oral health and individual- and area-level predictors of oral health in 5-year-old children with non-syndromic unilateral cleft lip and palate: the Cleft Care UK study. Part 3. Smallridge J, Wills AK, Mahmoud O, Chong A, Clark V, Collard M, Sandy JR, Ness AR. Orthodontics & Craniofacial Research. 2017 Jun;20 Suppl 2:19-26.
    14. Centre-level variation in speech outcome and interventions, and factors associated with poor speech outcomes in 5-year-old children with non-syndromic unilateral cleft lip and palate: The Cleft Care UK study. Part 4. Sell D, Southby L, Wren Y, Wills AK, Hall A, Mahmoud O, Waylen A, Sandy JR, Ness AR. Orthodontics & Craniofacial Research. 2017 Jun;20 Suppl 2:27-39.
    15. Centre-level variation in behaviour and the predictors of behaviour in 5-year-old children with non-syndromic unilateral cleft lip: The Cleft Care UK study. Part 5. Waylen A, Mahmoud O, Wills AK, Sell D, Sandy JR, Ness AR. Orthodontics & Craniofacial Research. 2017 Jun;20 Suppl 2:40-47.
    16. Centre-level variation in treatment and outcomes and predictors of outcomes in 5-year-old children with non-syndromic unilateral cleft lip treated within a centralized service: the Cleft Care UK study. Part 6: summary and implications. Ness AR, Wills AK, Mahmoud O, Hall A, Sell D, Smallridge J, Southby L, Stokes D, Toms S, Waylen A, Wren Y, Sandy JR. Orthodontics & Craniofacial Research. 2017 Jun;20 Suppl 2:48-51.
    17. Closing the Loop on Centralization of Cleft Care in the United Kingdom. Ness AR, Wills AR, Waylen A, Smallridge J, Hall AJ, Sell D, Sandy JR. The Cleft-Palate Craniofacial Journal. 2017 Dec 14.
    18. Outcome Measures in ULCP: The Modified 5-Year-Olds'-Index-Development and Reliability. Mittal TK, Ireland AJ, Atack NE, Leary SD, Russell JI, Deacon SA, Ness AR, Sandy JR. The Cleft Palate Craniofacial Journal. 2018 Jan 1:1055665618774018.
    19. Closer to the Truth on National Fistula Prevalence After Unilateral Complete Cleft Lip and Palate Repair? The Cleft Care UK Study.Yang AS, Richard BM, Wills AK, Mahmoud O, Sandy JR, Ness AR.Cleft Palate Craniofac J.2020 Jan;57(1):5-13. doi: 10.1177/1055665619858871. 
    20. Is There a Correlation Between Nasolabial Appearance and Dentoalveolar Relationships in Patients With Repaired Unilateral Cleft Lip and Palate?Lee TVN, Ireland AJ, Atack NE, Deacon SA, Jones TEM, Matharu J, Wills A, Al-Ghatam R, Richard BM, Ness AR, Sandy JR.Cleft Palate Craniofac J. 2020 Jan;57(1):21-28. doi: 10.1177/1055665619862145. 
    21. Range and timing of surgery and surgical sequences used in primary repair of complete unilateral cleft lip and palate: The Cleft Care UK Study Slator R, Perisanidou LI, Waylen A, Sandy J, Ness A, Wills AK.  Orthodontics and Craniofacial Research. 2020 May;23(2):166-173
    22. Educational Attainment of Children Born with Unilateral Cleft Lip and Palate in the United Kingdom. Grewal SS, Ponduri S, Leary SD, Wren Y, Thompson JMD, Ireland AJ, Ness AR, Sandy JR. Cleft Palate Craniofacial Journal.  2021 May;58(5):587-596 doi: 10.1177/1055665620959989.
    23. Surgical sequence, timing and volume, and variation in dento-facial outcome, speech and secondary surgery in children with unilateral cleft lip and palate: The Cleft Care UK Study. Orthodontics and Craniofacial research. 2022 Oct 7. doi: 10.1111/ocr.12612. Online ahead of print.   

       

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